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​WG4: ETHICAL STANDARDS AND PROCEDURES FOR CLINICAL RESEARCH IN PPD


Leader: Dr Susanne Uusitalo 


Objectives: Improve the protection of human subjects in all aspects of research in PPD

Tasks: i) Identify emerging ethical and legal issues in PPD, related to patient recruitment, sampling, informed consent, sharing of data, biological samples and personal data protection; ii) Discuss primary ethical concerns in human research and specificities in pregnancy, postpartum and newborn-infants; iii) Develop and stimulate adherence to ethical guidelines to address the challenges; iv) Foster the inclusion of women’s mental health advocates (e.g. local associations), and practitioners (e.g. midwives) in research ethics committees.

Milestones: WG Meetings; Local Workshops (1 per ITC aiming at reaching a minimum of 8 ITC members); Satellite talks within the programmed International Conferences with stakeholders.
​
Deliverables: Report on the emerging ethical challenges in PPD research namely the representativeness of the different stakeholders in current regional ethic committees; Publication addressing the emerging ethical issues, and a patient-information leaflet based of the former.

About RiseupPPD

​The Research Innovation and Sustainable Pan-European Network in Peripartum Depression Disorder (Riseup-PPD) - is an EU funded research network of professionals dedicated to the understanding of Peripartum Depression Disorder, from its prevention and assessment to its treatment and global impact.

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COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.  Learn more: https://www.cost.eu/